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Patient Letters

The following is the real-life story of Sally, a mastectomy patient.

Dear Dr. Allen, Debbie, Mary and Michelle, I just want to thank you for turning a mastectomy--- which I would have thought would be an awful experience--- into something positive.

Two months ago, when I was diagnosed with DCIS and told that I needed to have a mastectomy, I was shocked, upset and angry. From my perspective, I was facing what I thought would be mutilation of my best physical feature. I visited numerous surgeons who all recommended an implant for my reconstruction, since I was told I did not have sufficient tissue for an abdominal flap. They all said I would need a reduction of my other breast because they could not achieve the same volume with an implant. I asked them about the gluteal flap I had read about, but they did not perform that procedure.

Fortunately, I was given Dr. Allen's name through a personal friend who is a plastic surgeon and researched the issue for me. I vividly remember the day I met Dr. Allen in New York. He spent several hours with my husband and me, and his soft-spoken and calming demeanor immediately eased my fears. Whereas in the prior month I had left every other doctor's office in tears, I left Dr. Allen's office smiling.

Upon scheduling the surgery with Dr. Allen in Charleston, I then began my battle with my insurance company. They kept giving me names of in-network physicians whom they claimed could perform the gluteal flap. However, some of those doctors had only done the procedure a handful of times, and others were not available within the timeframe in which I needed to have the mastectomy.

I persevered through several levels of appeal with the insurance company, and ultimately prevailed. The time for surgery arrived, and I traveled to South Carolina on a Friday and had my pre-op visit with Dr. Allen. Meeting Debbie and Mary was like getting together with old friends. They had been so helpful over the phone, and were even more wonderful in person. And the whole office gave us restaurant recommendations for Charleston which my husband and I enjoyed over the weekend.

After the surgery, it was hard to believe I had just had a major operation. There was almost no pain. The nurses at East Cooper Regional Medical Center were so attentive, kind and caring, and they helped make the recovery incredibly easy. I was discharged on Friday, and felt well enough to travel and tour Savannah on Saturday. I am now a month post surgery, and even though I haven't had stages two and three of the reconstruction yet, I can't believe the results Dr. Allen was able to achieve. It is amazing to have a reconstructed breast of my own tissue.

Back home in New Jersey, I am fortunate to be in close proximity to Dr. Levine in New York. I have visited him several times in the last few weeks for stitch removal and other minor post-op issues. He is as accommodating, approachable and wonderful as the rest of the team in Charleston.Who would have thought that having a mastectomy could be a positive experience? But, despite all of my initial dread and anguish, that is exactly what it has been.

Janet
New Jersey


 
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